International Vexas Workshop
May, 23rd & 24th, 2024
International Vexas Workshop
23rd and 24th May 2024
Dear colleagues, dear friends,
We would like to invite you to the first international VEXAS workshop, which will take place in Paris, France on 23rd and 24th May 2024.
This is an academic workshop organized by FAI2R, the French network for rare immune diseases. This meeting will provide an opportunity to present the latest advances in VEXAS syndrome research and management in the presence of leading international experts in the field.
It is an in-person meeting open to physicians and researchers. The number of participants is limited to 100 people.
Register as soon as possible! We look forward to seeing you.
The Organizing Committee
David Beck, Marcela Ferrada, Sophie Georgin-Lavialle, Peter Grayson, Olivier Kosmider, Arsène Mekinian, Benjamin Terrier and the French Fai2R network
FERRADA Marcella
Bethesda, NIH clinical center.FERRADA Marcella
Bethesda, NIH clinical center. Rheumatologist in BethesdaShe is a rheumatologist and she participated to the discovery of VEXAS syndrome and is very implicated on the partnership with patients
GEORGIN-LAVIALLE Sophie
Sorbonne University, Paris, France Internal Medicine department, Tenon hospital Laboratory INSERM U_938, St Antoine hospitalGEORGIN-LAVIALLE Sophie
Sorbonne University, Paris, France Internal Medicine department, Tenon hospital Laboratory INSERM U_938, St Antoine hospital Professor of internal medicine and clinical immunologyShe has a medical doctorate in Internal medicine and a scientific doctorate in Immunology.
David BECK
New York University Grossman School of Medicine : Center for Human Genetics and Genomics and Division of RheumatologyDavid BECK
New York University Grossman School of Medicine : Center for Human Genetics and Genomics and Division of Rheumatology
He is an internal medicine specialist an researcher in the genetics of immune disorders.
Peter GRAYSON
National institute for Health : Professor of rheumatologyPeter GRAYSON
National institute for Health : Professor of rheumatology
He is the investigator of the translational program in vasculitis in the NIH in the USA. He codiscovered VEXAS syndrome with David Beck in 2020.
Olivier KOSMIDER
Paris University, Paris, France Hematobiology department, Cochin hospital : Professor of biological hematologyOlivier KOSMIDER
Paris University, Paris, France Hematobiology department, Cochin hospital : Professor of biological hematology
He is specialized in myelodysplastic syndromes (MDS), and is belonging to the French VEXAS study group.
Arsene MEKINIAN
Internal Medicine department, St Antoine hospital sorbonne University, Paris, France : Professor of internal medicine and clinical immunologyArsene MEKINIAN
Internal Medicine department, St Antoine hospital sorbonne University, Paris, France : Professor of internal medicine and clinical immunology
He is professor of internal medicine, And the president of the French group MINHEMON and copilot of the French VEXAS study group
Benjamin TERRIER
Paris University, Paris, France Internal Medicine department, Cochin hospital : Professor of internal medicine and clinical immunologyBenjamin TERRIER
Paris University, Paris, France Internal Medicine department, Cochin hospital : Professor of internal medicine and clinical immunology
He is the president of the French group on vasculitis GFEV and copilot of the French VEXAS study group
Wellcome coffee
Moderation: Sophie Georgin-Lavialle & Sinisa Savic
10:20 : Welcome
Olivier Hermine & the organization committee
10:30 - 11:15 : The story of the discovery
Peter Grayson & David Beck (USA)
11:15 - 11:35 : Clinical heterogeneity and the link with relapsing polychondritis
Marcela Ferrada (USA)
11:35 - 11:55 : Genetics of VEXAS in 2024
Olivier Kosmider (France)
11:55 - 12:10 : Vacuoles in VEXAS
Valentin Lacombe (France)
12:10 - 12:30 : Molecular and clinical presentation of UBA1- mutated myelodysplastic syndromes
Maria Sirenko (USA)
12:30 - 12:50 : Managing infectious disease complications in VEXAS
Jérôme Hadjadj (France)
Lunch
Moderation: Benjamin Terrier & Antonio luis lamas
14:15 - 14:45 : What do we know of pathophysiology in 2024?
David Beck
14:45 - 15:05 : Diagnosis of MDS in VEXAS
Thibault Comont & Pierre Fenaux ( France)
15:05 - 15:25 : Therapeutic options in 2024
Arsene Mekinian
15:25 - 15:45 : Bone marrow transplantation
Carmelo Gurnari & Bhavisha Patel
15:45 - 16:05 : Anticoagulation: how? For who?
Emma Groarke
16:05 - 16:25 : Diagnostic of VEXAS in emerging countries
Ciprian Jurcut (Roumania) & Rim Bourguiba (Tunisia)
Coffe break
Moderation: Arsene Mekinian & Bhavisha Patel
17:00 - 17:15 : VEXAS-like disease
Sophie Georgin-Lavialle
17:15 - 17:30 : Erythropoiesis in VEXAS
François Rodrigues
17:30 - 17:50 : How to measure disease activity?
Benjamin Terrier
17:50 - 18:10 : How to harmonize clinical trials?
Yohei Kirino
18:10 - 18:30 : How to collaborate on trials?
Peter Grayson
18:30 - 18:50 : Ongoing registries and biocollections
Sinisa Savic
18:50 - 19:00 : Conclusions on the first day
Organization committee
Dinner coktail
Wellcome coffee
Educational session - moderation: Emma Groarke & Yohei Kirino
09:00 - 09:20 : How do I diagnose VEXAS
David Beck
09:20 - 09:40 : How do I interpret genetic sequencing
Olivier Kosmider
10:00 - 10:20 : How do I treat
Peter Grayson
Coffe break
10:50 - 11:50 : VEXAS diagnosis challenge: the most atypical VEXAS case from all over the world
Eduardo Martin Nares (Mexico) & Sarah Bindoli (Italy)
11:50 - 12:00 : Price of the best young VEXAS padawan
12:00 - 12:30 : VEXAS Patient experience: Importance of a multidisciplinary team and the critical role of communication in patient care
Marcela Ferrada (USA)
12:30 - 12:40 : French MDS association
Jaqueline Dubow (France)
Lunch
Roundtable & open calls for collaborative projects
14:00 - 14:30 : Molecular diagnosis
Olivier Kosmider & Mrinal Patnaik
14:30 - 15:00 : Diagnostic criteria
David Beck & Sophie Georgin-Lavialle
15:00 - 15:30 : Therapeutic guidelines
Arsene Mekinian & Carmelo Gurnari
15:30 - 16:00 : Patient’s expectations
Marcela Ferrada
16:00 - 16:15 : Conclusions and wrap up
Organization committee
Register
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